Doctors said tiny Jaxon Buell would live for just a few weeks and would never see, speak or hear after he was diagnosed with the ultra rare brain disorder.
But the inspirational tot has stunned the medical world by going from strength to strength, even learning to say “mama” and “daddy”.
His remarkable development means all the more to doting parents Brandon and Brittany because they turned down medical advice to have an abortion before he was born.
Now Jaxon’s doctors are saying he could enjoy a much longer life than anybody expected, although his father says it is “miraculous” the youngster has made it even this far.
On a Facebook page devoted to the youngster, beaming dad Brandon wrote: “All we ever wanted was to give Jaxon the happiest, most comfortable, and most fulfilling life possible, because we know how precious his days are with us.
“Every doctor we’ve talked to is fascinated that Jaxon is here today, and they can no longer predict a prognosis, although we know the reality behind this better than anyone else, what Jaxon is up against, and that his life is already miraculous at this point.”
Baby Jaxon was born with an extremely rare developmental disorder called microhydranencephaly which means that part of his brain and skull are missing.
The youngster, from Tavares in Florida, has even been affectionately nicknamed Jax Strong by a legion of 150,000 online fans who have been moved by his inspirational tale.
A charity fund set up to pay for the tot’s medical care after mum Brittany quit her job to look after him has reached an astonishing £50,000.
As Jaxon marked his miracle first birthday, his dad said he could not be more proud of the youngster’s strength and determination to keep fight the odds.
He said: “No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime.
“For his life, I am better, I am blessed, I am grateful, and I am quite simply, one proud ‘Addy’. I love you, son. Well done, big guy. #?JaxonStrong.”